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06/19/2013 06:25:12 PM |
Epilepsy Foundation Massachusetts, Rhode Island, New Hampshire & Maine
Support GroupsThe Epilepsy Foundation Massachusetts,Rhode Island, New Hampshire and Maine provides adults, ages 18 and over, and teens, ages 15 - 19, living with epilepsy an opportunity to share common experiences through a supportive group environment. Current, active support groups for adults are listed in the first grouping below. Groups have unique dynamics, call Susan Welby for a referral into the group that may be appropriate for you.We also provide families the opportunity to share common experiences, network and support one another through Parent and Family Support Network (PFSN) by phone, email or in groups. Each parent led group is unique in some way. Some cater to parents of young children and others are open to all across the lifespan. The PFSN groups are in the second grouping. Please call Susan Welby for a referral to the appropriate group. We continue to strive to establish support and information groups throughout our region. If you have questions regarding support groups or are interested in attending or starting a support group or Parent & Family support Network group Current Adult Support Groups Cape Cod Adult Support Group ANNOUNCEMENT! Through collaboration with the Epilepsy Foundation New England will be sponsoring a presentation: Understanding Epilepsy and Seizures
This presentation provides an overview of Epilepsy: definition of terms, review of seizure types, seizure first aid and touches upon the psycho-social impact epilepsy can have on the individual and their family. Cape Cod Hospital, Mugar Building Cummaquid Conference Room February 20, 2013 4:00-6:00 p.m.For more information call Jeff Garrison 508-274-4636 540 Gallivan Blvd. 2nd floor Boston, MA 02124 Phone: 617-506-6041 Fax: 617-506-6047 E-mail: info@efmarinhme.org Epilepsy Foundation New England Serving MA, RI, NH, and ME Speaker: Susan Welby, Director of Programs Epilepsy Foundation New England Rhode Island Adult Support Group Meeting Dates vary use link below to ask for details; 6:30 p.m. Saco, Maine Adult and Parent Support Group
For a list of dates and topics click here.Post-Surgery Adult Support Group Meets the 2nd Wednesday of each month 6:00 - 7:30 p.m. BOD outreach letter Boston Adult Support Group Meets the 4th Tuesday of the month 6:00 - 7:30 p.m. Facilitator: Marie Hennessy Current Parent & Family Support Network Groups
Call Susan Welby 617-506-6041 , x102 to confirm meeting in case of cancellation Concord, NH PFSN Group 2013 Meeting Dates in Concord:February 2nd, Manchester, NH PFSN Group These NH meetings are open to all who are interested in discussing life with epilepsy: Parents of children, teens and adults living with epilepsy. If enough interest is generated groups targeting specific needs (i.e. adults, women, teens) will be considered for future groups. For more information contact Susan Welby 617-506-6041 x102 Western MA PFSN Group For more information contact Susan Welby 617-506-6041 x102 Southwest of Boston PFSN Group
Northshore PFSN Group
Message from Donna and Gail: It is with fond memories and a bit of a sad-heart we write to you today. After more than 12 years and meeting with hundreds of families we have decided to retire as facilitators of the Epilepsy Foundation’s Parent & Family Support Group here on the north shore. As with many things in life, we have received much more than we have given. We set out to volunteer our time & energy to help families living with epilepsy and in return we have gained support of OUR families along with new ideas, knowledge, resources and wisdom from YOU. Most of all we have gained true friends along the way. We thank you. We are hoping that our group will not end. We would love to train, assist and support new facilitators for our group. Would you consider continuing our tradition of supporting families on the north shore?? Our new facilitator(s) will be supported both by the Epilepsy Foundation and, of course, us in any and every way. We plan to host one more meeting at 7:30 on the second Wednesday of the month…..February 13, 2013. And then hopefully attend a newly led group in March! Thank you all for everything you have given us over the years!! Fondly, 85 Constitution Lane Danvers, MA(behind the Liberty Tree Mall) Suite 2A Sensory Learning Center, Enter through Door #8 behind the Marriott Courtyard. Use the one way driveway to go around to the back of the mall near the Home Depot. 2nd floor first door on the left. Co-Facilitators: Donna Rich and Gail Biancucci Southshore PFSN Group
NEW DAY AND 4th Wednesday 7:00 - 8:30 p.m. Panera Bread 138 Colony Place Road (Colony Place Shopping Plaza) Plymouth, MA Facilitator: Margie Carr
Cape Cod Group
Next meeting Wednesday February 6th, 2013 7:00 - 9:00 p.m. Panera Bread Iyanough Road, Hyannis Facilitator: Gillian Dorman Discovering My Epilepsy
The Matty Fund’s “Discovering My Epilepsy” support group is for families of children diagnosed with epilepsy. The group meets in For more information please visit the Matty Fund’s support group page: http://mattyfund.org/resources/discovering-my-epilepsy-support-group/ Or contact the Matty Fund at 401-789-7330 or MattyFund@cox.net
Check back often as we will be adding new events soon! |
